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#Spoonie. Think you’re tired? Think again

Many struggle to comprehend the depth of chronic exhaustion, thinking it’s just about feeling tired.

Yet, imagine starting your day with just 12 spoons of energy. Washing your hair might cost you 3 spoons, leaving you with 9 for everything else. This metaphor, known as the Spoon Theory, was introduced by Christine Miserandino, a Lupus sufferer, to explain the daily energy limitations she faces.

The term “Spoonie” has since resonated within communities dealing with chronic illnesses and disabilities, offering a shared language for discussing their experiences. It’s particularly embraced by those with autoimmune diseases like Lupus and MS, or ‘invisible illnesses’ such as Fibromyalgia, where energy expenditure must be carefully managed. While many can tap into an extra reserve of energy, #spoonies face a daily ration that doesn’t allow for that luxury.

For some, like a TikToker with PoTS syndrome, the energy cost of simple actions like blinking underscores a day-to-day reality where exhaustion is a “baseline state”. Engaging with the #spoonie community and understanding this language not only fosters empathy but also aids in accurately representing these conditions from the sufferers’ perspective. It’s crucial for brands to grasp this to connect genuinely with this audience.

Platforms like TikTok, with hashtags like #spoonie, #spooniesoftiktok, and #spoonielife, are invaluable for brands aiming to understand these conditions from a patient’s viewpoint. This insight helps bridge any gap between how brands communicate and the real-life experiences of those living with chronic conditions.

Please contact kate@listenandlearnreserach.com for more information.

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Please contact kate@listenandlearnreserach.com for more information.

 

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